A few days ago, I found out that my sister was approved to be a living liver donor. I am still a bit overwhelmed with the emotion of all of this and the magnitude of what this means. I think to sum up how I am feeling, I think the only proper word is one coined by my daughter.... I am scarcited (50 percent scared - 50 percent excited). …
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this is the main category that includes all aspects of me.
Yeah, I know it has been a while. School got tough. Medical condition are always compounding. And most days it is a tough to find much to be enthusiastic about. Yes, there is always hope, but sometimes it is hidden behind a wall of other things. I try to find meaning for all of this as best as possible. That is easier somedays and infuriating other days. I think the things that are toughest to manage are: always being tired …
Today is a day of revolutions. Just a couple of days ago, they opened up the vaccine for 12-15 year olds. My daughters have been anxious to get it. Partially to stop thinking about the virus, and partially to ensure that, when I become imunocomprimised, things will be safe in our home. So last night Joanna looked to see where the girls could get the vaccine, fortunately, it was really easy to get an appointment at the Walgreens near us. …
About two years ago, Josh and I had a little discussion that went something like this. If you can't mow the lawn and do it right, then you certainly can't drive a car with your learners permit. It didn't take him long to realize that I was serious. …
Let me start by saying Josh is an easy target. He is the only boy in the house and sometimes he does things that self paint a target on his back. Not to mention that any of my three girls would pay for the privilege to sell him out. And I don’t mean that in a trivial way. Allow me to explain. Each of my daughters has (as Liam Neeson says in Taken) “…a very particular set of skills. Skills …
So last night, I didn’t know if I was going to be able to complete all the school work due by Sunday at 2am. First let me say this. There have been too many times that the 2am time thing has screwed me up. Because 2am on Sunday is really just 2 hours after Saturday ends. There have been a few times that this has accidentally caused me to turn in assignments late. Anyway, lately I have been struggling with …
A few years ago, my kids made a fired up ceramic platter for me with all the foods that I make that they really like. It is a great gift that my wife came up with and my sister helped them make.If the way to a man's heart is through his stomach, then this is the acknowledgement then my kids hearts are really full. But the truth is, if you really want to know what they like most, it would …
There are somethings that is iconic American… and near the very top of that list… is the Cheeseburger. Tonight, Joanna didn’t want to make dinner. We talked about getting pizza, but there was too much resistance from the kids. So after some debate, we decided to skip the take out and make some burgers. About a week ago, I came up with a new idea for making them on the grill. The trick is to make them thin. Yeah, I …
Today, I went outside to take a couple of pictures for one of my classes. As I was walking back to the house, I saw this little flower. There was something about it that I found intriguing. Little did I know the realization that it was going to have. First. let me say that the green of our yard is made up of weeds. We have well water, live in the woods and have a lot of hard clay like …
I had a great office in the basement. But last year, we decided to move everyone around in the house and give the kids their own spaces. Notice I didn’t say bedrooms. Our house has three bedrooms in the main section and then a second master bedroom and micro bedroom in the in-law suite (Joanna’s mother lives with us). But with everyone home all 2020, we decided that the kids needed to be separated. Julie moved to the loft, which …
Today, I got the call. I am officially on the transplant list at VCU. Now the next hurdle is waiting for the phone call. So here is the way this works. Based on bloodwork, they calculate my MELD score (a scoring system for assessing the severity of liver disease). The higher the score the more severe the need for a new liver. So when does a new liver come? If someone went to a restaurant and putting their name on …